| Resources for Children with Disabilities Developed by Margaret Rose Fragile X Syndrome  FRAXA Research Foundation 45 Pleasant Street Newburyport, MA 01950 Phone: 978-462-1866 E-mail: info@fraxa.org Supports scientific research aimed at finding a treatment and a cure for fragile X syndrome. Funds grants and fellowships at universities worldwide. Runs a listserv on which individuals may post strategies and questions. Publishes FRAXA Newsletter, Medication Guide for Fragile X Syndrome (by Michael Tranfaglia), and Fragile X — A to Z: A Guide for Families (edited by Wendy Dillworth; downloadable from the web site free of charge). National Fragile X Foundation Post Office Box 190488 San Francisco, CA 94119 Phone: 800-688-8765 Fax: 925-938-9315 E-mail: natlfx@fragilex.org Promotes education concerning diagnosis of, treatment for, and research on fragile X syndrome and provides referral to local resource centers. Sponsors a biannual conference. Offers extensive audiovisual and teaching aids. |
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